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Robin’s Story by Robin Duncan Prior to 1992 when I was 22 years old, I was a fully fit guy weighing 11 stone, I was a full-time Warehouse Manager and in the Territorial Army. In 1992 my troubles started and I attended the local hospital every week but was totally misdiagnosed from day one, they did every test they could think of but could not come back with an answer, this went on for nearly two and a half years. I had a few weeks in hospital because I was so poorly so they just pumped me full of steroids, they did not know what was wrong with me and the way things were going at the time I didn’t know what was going on. I had been a fully fit guy reduced in two years to a nothing, I had no energy and I was constantly on the toilet. Eventually on 1st July 1994, I was diagnosed with Chrohns disease and I had my first operation, I was given only 12 hours to live, I was already in hospital when they told me that the tests revealed that my whole colon was about to explode and release poisons into my body. They did not tell me what to expect but when I woke up I was in the Intensive Care Unit with two nurses, 4 tubes sticking out of me and machines bleeping. The pain I was in was indescribable even with the morphine. The pain got so bad that I tried to kill myself in hospital, I just couldn’t take it anymore so I pulled out the tubes and tried to jump out of the 7th floor window. I was definitely suicidal, and just could not stand what I saw, my whole front was hanging out (they had fitted a Stoma) and it was just the tubes that were keeping me alive. To add insult to injury, just 3 days later, the surgeon told me that they had left packing inside my abdomen and they needed to operate again, this time they overdosed me with Potassium (salt) which induced two heart attacks on the operating table, somehow they brought me back to life again. Even worse, I caught MRSA the flesh eating killer bug can only be caught in hospital. They tried every known anti-biotic without success and I was isolated for 20 days, everybody who attended me wore facemasks to protect themselves.
I
had problems returning to my flat which was on the third floor without a lift,
there was no way I could climb the stairs because I was too weak. So when I
was eventually released from hospital I went to stay at my Grandma’s and lived
on the ground floor. I camped on her front room floor for 6 months until I was
able enough to take the steps that I had to walk up to my flat, one step at a time,
it took half an hour, holding on at every step. I was separated for all this
time from my wife and son Ben (about 7 years old) and I very quickly had a nervous
breakdown which I have never got over. Once I was back in my flat it was
another two and a half years before I could go out properly. This didn’t actually
put me in a wheelchair but on and off we hired a wheelchair so that I could
go out but we needed someone strong to carry me down the stairs. I was fighting
a losing battle, everything around me was wrong, everything in my body was wrong
and I could see no light at the end of the tunnel, things just got worse and
worse.
I had
every scan and test you could think of and all tests came back positive, I had
Osteoporosis, Rheumatoid Arthritis, Chrohns and a multitude of problems relating
to the years of prescribed drugs. The hospital said there was nothing more they
could do for me, I wasn’t wheelchair bound, it was still up and down and I couldn’t
go out because I was in so much pain which the medication wasn’t controlling
it. I had no quality of life so I wanted to end my life as quickly as possible
or just get out of my head but I didn’t turn to drink ( I had already been
there before) and I have not drunk alcohol for 3 years now. You do not need alcohol
to have a good time, in Abadiania there is no alcohol allowed because the
Entities say that it impedes healing and I think that is true, all you need for
a good time is true friends and love. I have two children now and although Chrohns
is not heredity, the two boys are checked out regularly and are clear, thank
God. The biggest toll was on my wife, who eventually took over as my care
nurse.
In 1999
we moved to a 3 bedroom house near the hospital (this was after 11 years in
that 3rd floor flat) and that was when I became wheelchair bound, we got the
house and I took a turn for the worse, I didn’t go out anymore from then on, I
did the football job every two weeks and nothing else. I wasn’t issued with a
wheelchair
Chrohns is not classified as a disability
because you have a bag and you can carry on with your life in theory, although
I was given a disability allowance. If I needed a wheelchair we hired one from
St John’s Ambulance. I lived downstairs in the new house and my wife and children
lived upstairs, that was my life I just laid on the hard floor, it was the only
way I could relax or sleep, watching television all the time, smoking and popping
pills, plus frequent trips to hospital right next door. I was told that
if I continued to deteriorate the Chrohns would be in my mouth and throat, this
would mean a tube for feeding and no quality of life whatsoever. I was so ill,
I used to stay in hospital for two or three weeks at a time and sometimes longer
and the medication got changed constantly so that I was a zombie, they just
did not know what to do with me, they filled me with medication and got me out
of there quick. The amount of medication should
have killed me but somehow it didn’t, it did affect my sleep which has been bad for
years, I was practically housebound for two and a half years which takes us
up to 2003. During this period I met George Chapman, a British Psychic Surgeon
who cured me of Chrohns, I cannot speak too highly of him, that was a major break
through. The hospital found this impossible to believe, they said I was in remission but still had everything else wrong with me. 19 years earlier I had put my hand through a plate glass window , from this I suffered some nasty wrist wounds and my hand became fixed claw like, very painful and almost useless, to cut a long story short my hand was cured on my first day at The Casa, it was my first miracle, I was able to open my hand and flex my fingers for the first time in years. But back to my story, in January/February of 2003 my mother (Phyllis Bennett) went to Brazil to see Joao de Deus and her last day there she showed him a photograph of me looking pathetic and he told her to take me back with her to Abadiania within the next week and he would heal me. How my mother convinced me to go I don’t know because I was a complete and utter sceptic, black is black and white is white, but I felt guided somehow to make this all-important journey, how I don’t know we both managed because even the fit people were exhausted. I really wasn’t up to a 13 hour trip, I could not even get to the end of the road but it wasn’t my mum who persuaded me to go, I just knew instinctively that I had to despite everything. I fasted for 3 days before we went and I was looking forward to eating and drinking on the flight but I couldn’t eat and I had a can of drink with ice which made me very ill, I had a serious fever, probably the ice. I went out on the 25th March and returned on the 18th April 2003 walking without the need of my wheelchair and on my own, my mother stayed on in Abadiania. I went on the first Casa day to see Joao but never got to see him because his aides decided that I was too ill and need to spend time in their sick bay at The Casa, this lasted 3 days and I was very very ill and expected to die. They treated me with love and were attentive but there was little they could do, I was too ill to go to hospital. I met some lovely Australian girl travellers who pushed me everywhere, they were great, they took me back to the Hotel where I was sick and I lost my bag, I was in a mess. Beth the Hotel owner called a doctor who didn’t know what to do but she did the most amazing thing she prayed, lifted into my wheelchair and then cleaned me up, she did everything she could to help but obviously I was past that, so I was carried off to hospital and saw an American Doctor, they tried to get some pain killers into me but they didn’t work, I was lifeless all the way to the hospital, I didn’t care what happened to me. I was so sick that my Stoma was pulled inside my stomach, you cannot describe it, it was the most excruciating pain imaginable.
I spent 4 days in hospital there, my Brazilian friends visited me and somehow
gave me a boost when nothing else was working, I just wanted to get out of
that hospital. I went back to the hotel and I got somehow to The Casa and saw
Joao who said for me to go to the recovery room,
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